A Dead Left Arm, Apparitions and Other Mini Dramas.

There is no other word or phrase for it, my left arm has been feeling numb, weird or ‘dead’ for about three weeks. I’ve had MS for more than fifteen years, and this weird feeling in my arm reminds me of before I was diagnosed. This current arm thing is a nuisance rather than something I need medication for.

Photo by Josh Hild on Pexels.com

BUT… but, it is more noticeable at night and as a result I haven’t been sleeping properly.

All of my life, I have had what I now know to be a ‘slow wave parasomnia’ – shouting out in my sleep. I ‘see’ windows falling in, spiders, and other weird things flying at my face. This first became a problem when I was 22 and my daughter was born (she is 23 now and talks in her sleep but it’s not as bad as me).

Photo by chivozol on Pexels.com

Anyway, the other night, I thought I saw my husband crouching down next to me. I thought (in my half sleep state) what are you doing there? So I reached out and put my hand on his shoulder. When my hand went through ‘him’, this woke me and I realised ‘oh, it’s just one of my weird sleep things’ I turned on my other side, and there husband was, fast asleep and oblivious to the apparition that my sleep had just caused.

Until I let him know what had happened the following day. ‘You are so weird’ he said to me. Well, I think that I only have myself to blame for what happened next…

Photo by Andrea Piacquadio on Pexels.com

Last night, I had trouble sleeping again, couldn’t get comfy, arm felt weird etc. I heard our dog walking about, which usually means she wants to be let out in the night. Then the cat started running around. This was about 2.30am. I got up, despite me going to the effort of walking downstairs (which is no mean feat when you’ve got MS and your legs are asleep) Martha, our Border terrier stood stationary at the top of the stairs staring at me with her massive brown eyes, a-la a tired child.

Eventually, I fell back to sleep. I was having a dream that I was drinking red wine out of a plastic pint glass. I don’t even like red wine, and in the dream, someone came up to me and offered me a Prosecco. All of a sudden, there was a lot of shouting and then, a pillow was thrown over my head and landed on my bedside cabinet (in real life).

THE SAME THING HAD HAPPENED TO MR HENTHORN!

My husband was having a dream that I was stood over him blowing in his face! Except he didn’t think it was a dream because he thought he could really see me and threw the pillow at me, or where I thought I was, this went over my head. When I protested he said:

‘Oh, are you saying you didn’t just do that to me, you weirdo?’ he was still dreaming I think.

I said : ‘I was having a dream about drinking Prosecco!’ (to be fair I was half asleep and may have just mumbled).

‘Oh, maybe I dreamt it then!’ Mr Henthorn said. We laughed, I’m still laughing about it now.

Great, now I’ve passed on my weird sleep problem.

Not a mini-drama, but Petal cat who is a 14 year old stay at home kind of cat has started meowing to go out. She never does this, she even made out that she was hunting a bird the other day. The mind boggles.

Petal and Martha chilling in Alicia’s room.

So you see, I live in a sitcom, or a soap opera at least.

Happy Weekend!

Samantha

PS I wrote these: https://www.amazon.co.uk/~/e/B01M4LPH9U

If You Love It So Much, Then Why Don’t You Just Marry It?

Hello Everyone!

For a while now, my gorgeous grown-up daughter and my life-saving physiotherapist have encouraged me to write about my experience of Multiple Sclerosis. I ALWAYS do what my physiotherapist tells me to (more about physio in a later post). And I usually do what my daughter says.

As I don’t know if my daughter is OK with me mentioning her (and I can’t be bothered messaging her at work) here is a photo of Gorgeous Daughter and me. (Her face is a bit blurry because she is laughing at something I said). 20190131_195034

I’m not entirely sure where to begin and have given these posts a great deal of thought. I was diagnosed with MS in 2005 just before my 30th birthday. When I think about it, I had symptoms prior to that, as far back 1989 when I was 14 years old.

During this time, yes, I have learnt a lot about Multiple Sclerosis. But I have also learnt a lot about people. You won’t hear me moan about, or mention that I have MS on social media. That doesn’t mean I don’t want to sometimes. It just means that the best way, the only way I have of dealing with MS, is to largely pretend I don’t have it. The things that people say, and sometimes how they have acted has done my head in (more than MS sometimes). And so, unfortunately – here is my starting point.

Sometimes, I think… if you love talking about MS so much, then why don’t you just marry it? (I am doing a massive eye roll now, and I know some of you are with me).

I use social media a lot because I write books I think you know what’s coming next… COVID-19 Coronavirus. Social media has proper done my head in today. Apart from the blamey posts about consumerism (made me feel like crap and I don’t buy owt anyway). And the countless toilet roll stories, I have also seen a few ‘low immune system’ posts. It is scary, scary times. I know we all have something to say, so do I…

NO ONE IS SPECIAL we are in this together. TODAY, 16th of March 2020, there is NO current advice for me and my MS diagnosis to stay indoors (the advice is the same as the next person unless you are on certain medications – see link above).

Sunday is Mother’s Day in the UK, and bless my 85-year-old dad he has messaged me asking if I’ll still be able to go to the meal he booked for my mum (because he’s such a sweet person). I said yes, as long as my sister doesn’t blow on her food ‘to cool it down’.

Now, if you are looking for some advice about Coronavirus and MS, then I’m sorry I’ve wasted your time. You’d be better off looking at the UK Gov. website HERE or, the MS society

More blog posts about living with MS (including one I have been asked to write for the physiotherapy service I use) coming as soon as I write them.

I would be interested to know if anyone thinks I should message my sister, to ask her not to blow on her food at the family meal on Sunday (she won’t read this blog).

Live your life, stay safe, stay well. Keep calm and carry on.

Sam xx

Samantha Henthorn is the author of the Curmudgeon Avenue series and other books.

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