For a while now, my gorgeous grown-up daughter and my life-saving physiotherapist have encouraged me to write about my experience of Multiple Sclerosis. I ALWAYS do what my physiotherapist tells me to (more about physio in a later post). And I usually do what my daughter says.
As I don’t know if my daughter is OK with me mentioning her (and I can’t be bothered messaging her at work) here is a photo of Gorgeous Daughter and me. (Her face is a bit blurry because she is laughing at something I said).
I’m not entirely sure where to begin and have given these posts a great deal of thought. I was diagnosed with MS in 2005 just before my 30th birthday. When I think about it, I had symptoms prior to that, as far back 1989 when I was 14 years old.
During this time, yes, I have learnt a lot about Multiple Sclerosis. But I have also learnt a lot about people. You won’t hear me moan about, or mention that I have MS on social media. That doesn’t mean I don’t want to sometimes. It just means that the best way, the only way I have of dealing with MS, is to largely pretend I don’t have it. The things that people say, and sometimes how they have acted has done my head in (more than MS sometimes). And so, unfortunately – here is my starting point.
Sometimes, I think… if you love talking about MS so much, then why don’t you just marry it? (I am doing a massive eye roll now, and I know some of you are with me).
I use social media a lot because I write books I think you know what’s coming next… COVID-19 Coronavirus. Social media has proper done my head in today. Apart from the blamey posts about consumerism (made me feel like crap and I don’t buy owt anyway). And the countless toilet roll stories, I have also seen a few ‘low immune system’ posts. It is scary, scary times. I know we all have something to say, so do I…
NO ONE IS SPECIAL we are in this together. TODAY, 16th of March 2020, there is NO current advice for me and my MS diagnosis to stay indoors (the advice is the same as the next person unless you are on certain medications – see link above).
Sunday is Mother’s Day in the UK, and bless my 85-year-old dad he has messaged me asking if I’ll still be able to go to the meal he booked for my mum (because he’s such a sweet person). I said yes, as long as my sister doesn’t blow on her food ‘to cool it down’.
More blog posts about living with MS (including one I have been asked to write for the physiotherapy service I use) coming as soon as I write them.
I would be interested to know if anyone thinks I should message my sister, to ask her not to blow on her food at the family meal on Sunday (she won’t read this blog).
Live your life, stay safe, stay well. Keep calm and carry on.
Samantha Henthorn is the author of the Curmudgeon Avenue series and other books.